Here are some of the questions we have been asked about our fundraising and about Louis.
Why not just get a normal (and cheaper) powered wheelchair?
It’s not just about getting from A to B. The snapdragon will allow Louis to live as normal a life as possible. It will let him play and explore just like other kids his age. He’ll be able to splash his hands in the puddles, feel the grass and mud, pick up toys that he drops and put them back on the shelves (I know, a tidy toddler, wishful thinking!)
As he gets older he’ll hopefully also be able to move himself into and out of the chair because it can go to floor or sofa or bed level.
Why is it so expensive?
The chairs are custom made. The cost includes yearly servicing and replacement parts and batteries for five years. As Louis grows, new seats for the Snapdragon will be provided. It will also have a standing frame attachment so that Louis gets time standing and so his bones will grow properly. Everything is made especially for Louis.
Why doesn't the NHS get this for us?
The chairs are very expensive. Powerchairs are available to some kids but a chair with variable height settings wouldn't be an option. Powerchairs are usually only available through the NHS to older kids. However, the steering and controls on the Snapdragon are very intuitive so they are easier for younger kids to control.
Where's the offline donation on the JustGiving website come from?
Where possible we are trying to encourage everyone to donate via the JustGiving page. This allows everything to be open and transparent, it means Turbo Trust can get the GiftAid where possible and it means we don't have to deal with any money.
Sometimes it's not possible for donations to go through this page. For example, one person has set up their own JustGiving page to do sponsorship for their half marathon run. This money has already gone to Turbo Trust but we'd like it to count towards our total. Sometimes the donations are too small, so the £1 we got from an elderly lady we helped across the road was too small for JustGiving's £2 minimum donation (but it was still an important and valued donation!).
We are listing all the offline donations in a google spreadsheet. This means we keep track of it and you can see where it's come from. Money raised at events is being accounted for in this sheet and added to the offline total.
Why does Louis have stuff taped to his cheek?
Louis uses up too much energy during the day and doesn’t eat enough so he gets extra milk overnight when he’s asleep that is pumped into his tummy through the tube.